Dis 2 peer response dis 2 Guided Response:. Assume the role of a faculty member at the local university and ask questions of your peers about the creation
Dis 2 peer response dis 2 Guided Response:. Assume the role of a faculty member at the local university and ask questions of your peers about the creation of an IRB and how it protects individuals’ rights when conducting research. Though two replies is the basic expectation, for deeper engagement and learning, you are encouraged to provide responses to any comments or questions others have given to you, including the instructor. Responding to the replies given to you will further the conversation and provide additional opportunities for you to demonstrate your content expertise, critical thinking, and real-world experiences with this top
These discussion were group discussion
Peer Group one.
Article: Kanner, S., Langerman, S., & Grey, M. (2004). Ethical considerations for a child’s participation in research. Journal for Specialists in Pediatric Nursing, 9(1), 15-23.
An Institutional Review Board is a board that reviews research studies to ensure the protection of the participants in the research study. IRB’s ensure the research goals of the project are being met by ensuring compliance and protection of human subjects involved in research. “The federal regulations require the IRB’s give special consideration to protecting the welfare of particularly vulnerable subjects, such as children, prisoners, pregnant women, mentally disabled persons, or economically or educationally disadvantaged persons,” (swarthmore.edu ). All participants in research have rights that are to be protected. These rights are based on the three basic ethical principles: respect for people, beneficence, and justice. There is a scientific need to conduct research on children based off of children having congenital, genetic, and other diseases that require research. The goal of medical research is to gain knowledge through scientific observations.
One way that an Institutional Review Board safeguards they participants involved is by using an online training module by the NIH. This training gives a thorough history of the ethical treatment of human study participants. Schools and Universities usually require faculty to participate in an extensive training before allowing them to perform research using humans. The NIH uses a program called Protecting Human Research Participants while other institutions such as the University of Miami use Collaborative Institutional Training Initiative
In this article children were involuntary infected with Sexual Transmitted Diseases (STD’s) and basically were experimented on like guinea pigs for several years without a parent’s consent. As young children from the ages of 4-9 years old this was happening daily periodically. Being able to implement parent consent into Institutional Review Board (IRB) will be the tell all be all when it comes to any kind of medical research on any human being no matter their range of age. Giving such power and authorization to young children was a cause of disaster but researchers gained a lot from these vulnerable children. Implementing an Institutional Review Board (IRB) will hold everyone accountable and making sure the right steps are being taken to ensure the well-being of these children.
In conclusion, the involvement of children in research presents ethical dilemmas. All participants in research have rights that must be protected regardless of their age or mental capacity. As advocate for children, nurses and doctors must ensure that children’s preferences and concerns are recognized in the informed consent process. Appropriate additional safeguards have been included to protect those rights and welfare of human research who are more vulnerable to coercion or undue influence. By providing children honest respect, and privacy, all nurses can help assure that the child is given a valid informed consent.
Mertler, C. A. (2017). Action research: Improving schools and empowering educators (5th ed.) [Electronic version]. Sage Publications.
Vulnerable Populations. https://www.swarthmore.edu/institutional-review-board/vulnerable-populations (Links to an external site.).
Peer Group 2
· Daley, T., Singhal, N., & Krishnamurthy, V. (2013). Ethical Considerations in Conducting Research on Autism Spectrum Disorders in Low and Middle Income Countries. Journal of Autism & Developmental Disorders, 43(9), 2002-2014. doi:10.1007/s10803-012-1750-2
The purpose of an institutional review board (IRB) is to make sure that all the necessary steps are taken to safeguard the privacy, confidentiality, rights, and privileges of individuals who actively participate in or share information in a study. IRBs uses a group approach or process to review research protocols and other various materials, such as consent forms, to ensure protection of human rights and welfare (Allen et al., 2008). Regarding special populations, such as children with autism spectrum disorder (ASD), it’s important to collect accurate data for autism research, consider the ethical, social, and legal implications of research, and ensure information stays private across studies. In addition, it’s important to determine the risks and benefits of research, assure confidentiality, and inform consent among all children and families (Allen et al., 2008).
According to an educational study, ethical consideration was taken when researching ASD in children and families in multiple countries. For example, as part of the study in India, the IRB maintained ethics by selecting participants from a group of diagnosed ASD children at hospitals and special schools, children and families signed a waiver outlining the guidelines of the plan, and they were given informed consent, so that they understood what they were signing up for (Daley et al., 2013). The IRB also showed families how the research would be conducted.
When it comes to understanding a topic, research is essential to gain knowledge and understanding. ASD has been on the rise in a variety of countries, specifically in the low or medium income. There are organizations researching ASD in India that are using unethical treatments in their search. For example, the Indian Medical Termination of Pregnancy Act of 1971 permits the abortion of a fetus up to 20 weeks when there is evidence of a congenital defect (Daley et al., 2013). It states that a fetus can be aborted when there is a discovery of a disability, which is acceptable.
During the intervention research, they found out that parents are so desperate to receive services that they will disregard the efficiency and safety of research because it can feel like it is the only option (Daley et al., 2013). The implementation of an IRB body will be established to protect the rights and welfare of human research subjects recruited to participate in research activities conducted under the auspices of the institution with which it is affiliated. Participants should feel like they have different options and be protected when it comes to research. Researchers need to consider what kind of research to do, as well as how to do it. Most importantly, protecting their participants is essential to any action research study.
Allen, T., Bronte-Tinkew, J., & Joyner, K. (2008, February). Institutional Review Boards (IRBs): What are they, and why are they important? Research to Results. https://www.childtrends.org/wp-content/uploads/2008/02/Child_Trends-2008_02_19_Evaluation7IRBs.pdf
Daley, T., Singhal, N., & Krishnamurthy, V. (2013). Ethical Considerations in Conducting Research on Autism Spectrum Disorders in Low and Middle-Income Countries. Journal of Autism & Developmental Disorders, 43(9), 2002-2014. doi:10.1007/s10803-012-1750-2